Friday, April 28, 2017

the suffering is unbearable for us twins, in Ireland

looking to see 'HOPE' on the menu!
at the Brain conference.
the suffering is unbearable in a country that seems to despise the public healthcare services, and a country where it decides now that the public who havent the insurance are treated with contempt, on all fronts we have no systems in place.

am i missing something here? because this blog is my testament to the very thing they are speaking of.
do we need research to tell us we are the forgotten ones?
do we really need it?
more of the same?
c'mon doctors, and HSE just get your ducks in a row on this one please!
fighting now for well on a decade for a basic care for serious, very serious progressive neurodegenerative disorder we are now suffering very badly.
this is an offense and a blot on the Irish landscape as it claims its 'in recovery'  yet i am unsure what is in 'recovery' i am not.

when Prof. Hardiman (neurologist) puts up such a slide, we take this all on board, its the truth 
Lists are in order, to explain what is so missing in the care for my twin and i and its stark and having a profound effect.

getting sick a decade or more ago we began a muscle wasting problem but since then no physiotherapy that is sustained or ongoing is ever given, we may get a tiny bit here and there but that is all.
there is no consistent or ongoing hydrotherapy and the fact is both of these therapies have been mooted from day one, well over a decade now since first written down.

this is neglect and an offense under the non fatal offenses against the persons act.
ditto is coercion and harrassment, which we have had in spades.
any harm done has been done by the irish healthcare system.

looking to see 'HOPE' on the menu!
at the Brain conference.
this is for all countries, so....(i think)...we with problems are fucked in this area.
what we have not got and should have:

a neurologist
a neuromuscular specialist
a neuromuscular specialist nurse
a neurophysiotherapist and still without a neuropnhysiotherapy assessment ever.
this is bizarre in extreme.

the effect is 'go home and die.' without sustaining the body as through intervention at a skills level that is what is happening and that is what we have been told by 'default.'

we have no night time care.
not enough PA's to cope.
we have no social outlets or stimulation and every where we attempt to get help we are shown basically 'the door.'

care in ireland in the public system is outrageously flawed, absent and our nation is being neglected en masse but those who have them insurances can never see the difference in the care we receive as opposed to them.

single adults are the worst effected, they cannot produce the family as support and are run ruckshod over, women fare worse as we are believed to be more malingerers and feigning illness than men. the famous gender stigma is perverse and pronounced.

can this wonderful Prof. O. Hardiman say it as it is, YES, she can and in fact is as sharp as a button on the state of this nation!
i am designing a lapel button, it will denote the irish citizen that receives no medical care for the disease burden she has, i will put it on teashirts, car and everywhere and i will quote the World Health Organisation and our fundamental rights to healthcare which we cannot get for love nor money and at present we have neither love for the system nor money to buy the care we need.

posh voices, poor services and that is the way we remain, our voice sort of pitches all towards the elitism of posh voices, the posh voice my friends is an echo of past times, i have no issue being the present gurrier, at least we, as gurriers say the flipping truth and support each other and are the salt of the earth.
by the way i am also unhappy with both Leo Vladakar and Coveney for cooking the stats books, exaggeration is seen through by this gurrier.
meanwhile i make my videos and say it as it is.

Tuesday, April 25, 2017

when the Irish simple do not understand words, phrases and ideologies, it has to be explained. Manure Curley Carrot does this.

Wisdom from a Carrot

Meeting the HSE
Manure Curley Carrot-Top

It is a
 old World

Playing the dumb carrot

Ms. Curley Carrot-Top has this definition of playing the dumb carrot – by example lies therein the truth of ‘playing the dumb carrot:

what do they mean by ‘ongoing physiotherapy?

Curley Carrot-Top is not fooled – so tries to offer assistance in the task of understanding.

to   HSE

Respondents to this question have answered the following:

Long term
Should mean it is happening
Webster Dictionary: continuing to exist, happen or progress. Continuing without reaching an end.
Continuous, ongoing and regularly
Continuous. Frequent. Repeated.
·       Oxford dictionary definition:  Continuing; still in progress. Eg ‘This consultation remains ongoing and as a result, no date has been set for closure.’

SYNONYMS (oxford dictionary)
in progress, under way, going on, continuing, happening, occurring, taking place, proceeding, being done, being worked on, being performed, current, extant, existing, existent, progressing, advancing, evolving, growing, developing

Misunderstanding can get in the way….

Postcard from ‘Sunnyside Up’

Dear Mammi,          .      Ms Carrot
Wish you were here.  .      c/0 CHO6
The sun is bursting   .      Dublin
Bright in the skies    .      code unsure
Burning me to a      .      (try the
Frizzle.  I left the   .      postman- 
Lotion in the bath-   .      very
Room.  Guess there  .      reliable)
Is no point in         .
Sending it on.         .
You wont recognise  .
Me when you see me  .
Me skin hurts, I may  .
Need you.              
Love Curley  

A postcard from ‘Sunnyside Up’

Dear Mammi,           .
Its pissing out of     .     Ms Carrot
The heavens, stayed  .     c/o CHO6
Indoors, goose bumps.     Dublin
Like the measles.     .     (I know the
need your soup.      .      area code
Second thoughts –    .     but too cold
Maybe not.             .     to think (so,
                               Ask local
Love Curley                 postman
                              (they know

HSE Logo 

Dear Mr. Minister for Health (Teachta Dala),

Them twins are getting a ‘skilled professional service.’
This is the definitive version.
And if you believe that – you will believe anything.

Yours sincerely

Acting head of Disability
Area CHO 6
(‘acting head,’ secunded from Mental Health – the real one is on pregnancy leave.  Rest assured, she has paid her stamps and is full of entitlement).

The manure bunny trap = venus fly trap

There has to be song in this one, if there was it goes something like this, (goltrai), I do believe.

John Steinbeck once wrote that "they're a dark people with a gift for suffering way past their deserving", about the Irish. I couldn't help but agree with him on this quote.

John Steinbeck, who be the Derk People?  Is it the HSE or the suffering?
Manure Curly Tops Carrot’ will explain the Dark side of the dark people who inflict suffering way past OUR deserving.

‘Barney McKenna - I wish I had someone to love me

Christy Moore – Natives

"For all of our languages, we can't communicate"

This is for the education of the Minister for Health and the DG of the HSE, it clearly is needed in spades.

Emphasis is on the spade or the shovel digging for this.

(shovel is drawn here and a spade for comparison)

Fake news
by Manure Curley Carrot-Top:
the Irish meaning of:
  10th Anniversary of the adoption of CRPD: 2006 to 2016

  The Convention follows decades of work by the United Nations to change attitudes and approaches to persons with disabilities. It takes to a new height the movement from viewing persons with disabilities as “objects”  of charity, medical treatment and social protection towards viewing persons with disabilities as “subjects” with rights, who are capable of claiming those rights and making decisions for their lives based on their free and informed consent as well as being active members of society.
The Convention is intended as a human rights instrument with an explicit, social development dimension. It adopts a broad categorization of persons with disabilities and reaffirms that all persons with all types of disabilities must enjoy all human rights and fundamental freedoms. It clarifies and qualifies how all categories of rights apply to persons with disabilities and identifies areas where adaptations have to be made for persons with disabilities to effectively exercise their rights and areas where their rights have been violated, and where protection of rights must be reinforced.


Down with that carrot says the Minister with ‘special’ responsibility for those (in Ireland) with a disability.

E.g. In other words, plain (Irish) speak “Fuck THAT!”

Safeguarding Vulnerable Adults
All adults have the right to be safe and to live a life free from abuse.  All persons are entitled to this right, regardless of their circumstances. It is the responsibility of all service providers, statutory and non-statutory, to ensure that, service users are treated with respect and dignity, have their welfare promoted and receive support in an environment in which every effort is made to promote welfare and to prevent abuse.” ‘Safeguarding Vulnerable Persons at Risk of Abuse – National Policy and Procedures’.
In December 2014, the HSE launched its safeguarding policy for older persons or persons with a disability that, as a result of physical or intellectual impairment, may be at risk of abuse.
The “Safeguarding Vulnerable Persons at Risk of Abuse  - National Policy and Procedures”, which applies to all HSE and HSE funded services, outlines a number of principles to promote the welfare of vulnerable people and safeguard them from abuse.  These include a requirement that all services must have a publicly declared “No Tolerance” approach to any form of abuse and must promote a culture which supports this ethos.

 Down with that carrot says: 
(HSE logo here)

(HSE Logo
The Director General of the HSE and Mr.Pat Healy

In other words, plain (Irish) speak “Fuck THAT!”  add HSE Logo here please!
“A Strategy for Equality”
“We, as people with disabilities, are shouldering our responsibility to ensure that disabled people are “included” as full citizens in Ireland. It is now time that everyone else joins this process, so that we can all live and participate together as equal members of society”.
This Report is an equality strategy which will, if implemented, set about removing the barriers which stand in the way of people with disabilities who want to live full and fulfilled lives. It will also benefit greatly the parents and carers of people with disabilities. The Commission’s strategy involves legislative solutions, proposals for new policy initiatives and new structures for delivery of equality services within a framework of rights, not charity. The Commission has developed a model of service which places the user of those services at the centre of the process of service delivery, from the planning stage right through to implementation.
So says my friend Paddy Doyle on his website

In other words, plain (Irish) speak “Fuck THAT!”  consider a HSE logo here too please.


Social Care

(the reality of “sunny side up)?”

The Social Care Division was established to support ongoing service requirements of older people and people with disabilities. It is a fundamental step in moving forward with the design and implementation of models of care across both these Care Groups to support and maintain people to live at home or in their own community and to promote their independence and lifestyle choice in as far as possible.
National Director Social Care:  Pat Healy
Ph: 01 635 2308 
Social Care encompases

In other words, plain (Irish) speak “Fuck THAT!” Logo of the HSE may be added here.